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Ethical and Legal Requirements of Transnational Genetic Research

Produktform: E-Buch Text Elektronisches Buch in proprietärem

To facilitate genetic research, the collection, integration and exploitation of data are a prerequisite. Genetic data, however, providing information not only about the person him/herself, but also about her/his family, parentage and ultimately ethnic descent, is considered to be the most valuable, and yet most vulnerable data which needs to be protected at all costs. On the other hand, clinical research makes it necessary to disclose and exchange genetic data. Content Introduction Ethical requirements (Informal consent; The right to know, the duty to inform, and the quality of feedback; Summary of consolidated ethical requirements; Outlook: Ethical challenges in the European countries) Legal requirements (Theoretical analysis, Data protection within a trans-European research project; Data protection framework within genetic research networks; Legal conclusions)weiterlesen

Elektronisches Format: PDF

Sprache(n): Englisch

ISBN: 978-3-8452-6636-7 / 978-3845266367 / 9783845266367

Verlag: Nomos

Erscheinungsdatum: 09.07.2015

Seiten: 151

Auflage: 1

Autor(en): Nikolaus Forgó, Regine Kollek, Tina Krügel, Marian Arning, Imme Petersen

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